Neurofibrosarcoma

Jake was nine years old when we discovered a mass on his right maxillary lip. October of 2007 we sent him in for surgery to have it removed and biopsied.

It was a Malignant Peripheral Nerve Sheath Tumor. Our worst fear, Cancer. Neurofibrosarcoma. We had an appointment with the Oncologist. His was a low grade, mitotic index was 3. This type of tumor is locally invasive and frequently occur, but rarely metastasize in low grades.

They often affect the limbs, and can cause neurological problems, lethargy, and lameness. These tumors often grow back within a year, most times sooner. Jake's prognosis was fair to possibly long term guarded. The complete removal of the tumor could not be guaranteed, as the margins were clean in some areas, however, the mass contacted the deep ink margin, and this may reflect some degree of deep tissue shrinkage/retraction.

First day home from surgery.

First week home from surgery.

His daily walk for exercise.

We had to check to see if the cancer had spread to other areas before deciding what our next step was. His Lymphnodes were biopsied, Lungs xrayed, and ultrasound of the liver and spleen performed. All clear of cancer. We were so relieved, as the Oncologist told us if this had spread, those would be the first places it would spread to.

Under normal circumstances, it would have been suggested for Jake to have a second surgery to make a wider margin, they would have to take part of the lip, and he would undergo radiation treatments. Due to the complications he went through during the recovery process after the first
surgery, the Oncologist, our vet, and us, decided not to go that route. We chose to give supportive care during whatever time we have left with him and make it quality time.

I spent hours every evening doing research on Neurofibrosarcoma and the cancer yahoo groups, to find supplements that may help fight cancer, or at least prolong it from returning. A list of supplements I found to aid him are IP6, CoQ10, Selenium, Vitamin B, Vitamin C, and Vitamin E.

It has been eleven months since Jake was first diagnosed, and up until now he has been cancer free. He will be due for more xrays and ultrasounds soon to see if the cancer has returned. We are hopeful.

Enjoying ice cream on his 10th birthday this past June.

Where he can be found most days.

11 months later, a happy boy.